Well, the last 21 days have been HARD and I have counted every blinking second! In almost a month of no eating I had to tell more people that I have Crohn's than I have done in the past 6 years.
In a way it was really re-affirming. Many people who I work with or know through other people never had any inclination that I was sick and I had many comment about how I did not act like a sick person.... had to explain that I am not necessarily sick, just living with a chronic condition... a complex conversation to have with some one you sort of know at a wedding!
So, after an emotional and some what shell shocked few weeks, I had yet another clinic appointment today with the lovely prof.
After much convo with MH last night about how he is doing with all this, how he is coping and how we are both coping I put a proposal to him. Lets talk to the prof and see what he thinks about, after 3 weeks on the elemental diet, can we look to starting to scale up so I can enjoy my fish and chips on the wedding day and perchance a few meals out on the mini moon, maybe? I stick to the plan and when I get back from my mini-moon, we talk progress, we talk surgery, we talk options.
In this, I take back control. Take that demented guts, pow. And the prof agreed! So, after a impromptu meeting with the dietician I have confirmed the list of my safe foods that are also low residue. First stop, Marmite on white toast!
Now I can focus on the things that matter; my health & my love. My health is being looked after on my terms now (not really a compromise, more of an easing) and my love can have more attention and we can, after what feels like and age, focus on August cos WE ARE GETTING BLINKING MARRIED!!!
PS. The symptoms are lessening. Can't remember when I went to the loo so infrequently in a day. The fistula seemed to have let out a rather dramatic dying gasp on the weekend which was not pleasant. But, in an unexpected development, my body saw it off all by itself! Fingers crossed this is the right choice.... lets hang on and see! :)
Writings and ramblings of a sometime crafter, sometime trapeze addict, sometime creative bod...and sometime nemisis of Crohns disease and all the glamour that entails!
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